Introduction

Carrying out intravenous (IV) treatment at home may appear to be the best option to allow you to continue as near a normal lifestyle as possible. However, for each course of treatment you commence it needs to be decided whether this is the most appropriate choice.

The following factors need to be considered:

• Your present medical condition

• The availability of appropriate family and professional support

• Your personal needs and preferences

• Any changes to your home situation.

These guidelines are designed to assist you in the safe administration of your IV at HOME only. We do not support the preparation and administering of your antibiotics anywhere other than the home.

Training will take place as an inpatient or as a day-case, until you are safe in the administration of your treatment and feel confident to undertake your treatment at home.

You will be reassessed every year to ensure you are maintaining your skills for home IV treatment and to make sure nothing has changed. It is not a test so please don’t feel nervous.

There may be times when we feel that it is unsuitable to carry out home IV therapy; the final decision will be with your consultant. Following training you will always be given your first dose of antibiotics in clinic at the start of each course of home antibiotic treatment.

Remember the hospital may decide to discontinue home treatment at any time. You can also decide to have your treatment at hospital at any time; nothing is set in stone

The area you have selected for mixing your IV therapy must:

• At all times be kept clean and free from clutter

• Be a designated area for IV treatment

• Have no pets or litter trays kept in the room.

Your home environment will be assessed prior to commencing home IV therapy.

You will be sent home with all the medication and equipment you require to mix and administer your IV therapy. Most of the medication used does not need to be stored in the fridge. You will be informed of the medications that do require refrigeration.

You will need a clean dry shelf or cupboard to store the equipment; this should be away from a radiator and out of reach of children and pets. During the assessment in your home we will discuss the best place to use if you are unsure. All your medication will be provided by pharmacy. All the equipment you require will be provided by the CF unit.

If you have a shortage of anything, please contact the CF unit and we will arrange further supplies. If you have any medication or equipment left over from previous treatments, please complete the checklists that are provided and give that list to the CF nurse.

This will prevent wastage and your home having unnecessary medication lying around. We cannot take back medicines but you can use them for future treatments if still in date and stored appropriately so they can be used next time.

Please ensure the following:

• Any hoovering or dusting has been completed at least one hour prior to preparation and administration of medicines

• All windows and doors must be closed whilst preparing the IVs

• Only people who are assisting with preparation of the IVs between preparations should be present in the room

• There are no pets in the room • You have access to a watch or clock.

Wash the work surface and tray with hot soapy water using a disposable cloth and then dry with a paper kitchen towel. You can clean the trays in the dishwasher if you have one.

Collect all the equipment and medication required for this administration of IVs.

Wipe the clean tray with an alcohol wipe and allow it to dry for 20 seconds as per training instructions. Prepare the equipment and medication as per training and refer to the information sheets if needed. You will be given individual antibiotic information sheets if you require them.

Remember we never use syringes less than 10mL (5mL normal saline posiflushes have the same diameter as a 10mL syringe). Ensure all packaging is intact before opening – do not use wet or damaged items.

IV medication must be prepared immediately prior to use.

IV medication cannot be prepared hours before they are due to be given. This is due to the risk of infection and instability of the medication.

• Handwashing is the most important single method of controlling infection. It is VERY important that it is carried out correctly and at the appropriate times

• Fingernails should be kept clean and short, and jewellery should not be worn, except a wedding ring. False nails or nail varnish should not be worn • Any breaks on the skin should be covered with a waterproof dressing. If you have any worries regarding your skin, please contact the CF nurse who will give you the appropriate advice

• The CF nurse will discuss with you if you are required to wear gloves Where access to running water is safely available everyone must wash their hands with liquid soap to remove any germs from the skin and then dry thoroughly. 

Anyone supporting the administration of IV treatment must also be supervised in hand washing techniques.

Alcohol Hand Gel

After washing hands you will be required to use alcohol hand gel at different stages whilst preparing your antibiotics. If anyone involved in the IV treatment has an allergy to alcohol hand gel they must inform the CF specialist nurse who will suggest an alternative. Alcohol hand gel is not a replacement for washing hands. 

Home Tobramycin levels

If your treatment involves an antibiotic called Tobramycin, you will need to learn how to do a blood test from your finger to check your Tobramycin levels. It is important this is done to check you are receiving the right dose of Tobramycin. Please follow the plan on the printable PDF version of this leaflet.

1.Before doing a finger prick test make sure you have all your equipment in a clean dry place.

2.Wash your hands and rinse with warm water (dirty hands can contaminate a blood sample and give an inaccurate result).

3.See diagram below showing the recommended fingers and sites for taking the blood sample. NOTE: Pricking the fleshy middle part of your finger can hurt more.

4.Choose a finger and massage it to improve blood circulation.

5.Hold the lancet on the side of the finger and press. Gently massage your finger from the base of the finger to the top to obtain a drop of blood.

6.Wipe away the first drop of blood and then continue to collect the blood into the bottle up to the brown line. Try to drip the sample into the bottle.

7. When you have collected enough blood put the brown cap on the tube and mix gently from side to side 10 times.

1.Enter date and time on the small sticky label highlighted.

2.Stick the label to tube.

3.Put the tube in the clear plastic bag and seal by peeling back the yellow strip and sticking down.

4. Attach the bag to the lab form by peeling back the white strip and sticking to the lab form.

5. Enter date and time on Pathology form (also highlighted). The CF nurse will have signed the form. 6.Protect sample from heat and light during transit by placing the sample in the envelope provided.

7. Deliver to pathology lab as soon as possible after obtaining sample.

8. Inform CF team that you have delivered sample, as soon as you have dropped it off by texting the CF mobile.

What happens next?

Once your result has been reported by the lab it will be reviewed by a member of the CF team. This may not be until the next day. We will only contact you in the unlikely event the result shows there is a need to change the Tobramycin dose.

Please continue to take your course of home IV antibiotics as prescribed unless instructed otherwise by the CF team. If you want to discuss the result with a member of the team, please contact us. If you are having any problems with your home IV antibiotics or think you may need a home visit, please contact the CF nurse.

General information

If you start to experience any of side effects listed in the table below please follow the advice in red.

General information table
Adverse Reactions Severe Allergic Reactions

When having your IV treatment you may get an adverse reaction. This could be any of the following:

• Rash
• Itching
• Nausea and vomiting
• Headache
• Diarrhoea
• Pain/tingling sensation to lips or hands
• Backache
• Abdominal discomfort following your infusion
• Fever

When on home IV therapy you should also be aware of the possibility that your treatment could cause a severe allergic reaction.

Symptoms of a severe allergic reaction are as follows:

• Sudden collapse or illness
• Severe difficulty breathing, chest tightness or wheeze
• Swelling or tightness in the throat or neck
• Tongue swelling
• Discoloration of lips.

If any of these symptoms should happen, STOP your infusion immediately and seek medical advice. In the unlikely event of a severe adverse reaction please:

• Stop the drug immediately
• Call 999 for an ambulance
• Do not flush your line.

 

During your treatment of home IV antibiotics the CF nurse and physiotherapist will contact you to review how you are responding to the IV antibiotics and any extra CF treatment recommended.

You will be asked to send in your lung function test (spiro) using your Nuvoair on day 8. This is part of your treatment. If you refuse to complete our assessments, you will no longer be able to undertake home IV therapy.

If you have any queries, please contact the CF team.